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SMARCB1 e.V.
Cancer research for young people.
Sarcomas are considered the "forgotten cancer". Malignant tumours of the bones and soft tissues account for only about one percent of all cancers worldwide. As a result, sarcomas receive little scientific attention and hardly any money is invested in research. Research approaches are often uncoordinated or not pursued further. A holistic concept is lacking. SMARCB1 e.V. has set itself the goal of changing this.
One characteristic of "forgotten cancer" is that it accounts for about 15 - 20 percent of all malignant new cases in children, adolescents and young adults. In this case, too, young people have no lobby.
There are about 70 subspecies of sarcomas. Modern research has found that a number of them have a common characteristic. They lack SMARCB1 or its function is impaired. This gene suppresses the development of tumors. Today, these sarcomas can therefore be better defined by their common genetic property than by the region of the body in which they occur. This group includes malignant rhabdoid tumors, synovial sarcoma and epitheloid sarcoma, to name a few.
With the perspective on a group of sarcomas that share a common trait, SMARCB1 e.V. is going its own way. The recognition of the importance of SMARCB1 brings this gene and its tumors into the focus of activities.
SMARCB1 e.V. therefore does not consider research on these sarcomas in isolation, but promotes networking. SMARCB1 e.V. supports research projects on this group of tumors ideally and financially and intends to initiate its own research projects in the long term. A prerequisite for this is the acquisition of financial means.
In order to achieve these goals, SMARCB1 e.V. wants to attract research players and sensitize the public to the importance of the topic. Anyone can follow this path so that sarcomas are no longer the "forgotten cancer".